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MS Awareness Week 2018

George Adam MSP, MS Week 2018 #kissgoodbyetoMS

MSPs kiss goodbye to MS during MS Awareness Week 2018.

 

On Multiple Sclerosis (MS) Awareness Week (23-29 April) MS Society Scotland were in the Scottish Parliament to raise awareness of the important role research plays in the lives of people affected by MS.

 

MS affects more than 11,000 people in Scotland and can cause problems with how we walk, move, see, think and feel. But the MS Society is driving research into more – and better – treatments. Kiss Goodbye to MS encourages people to give up their guilty pleasure this May to raise money for research.

 

Paisleys MSP, George Adam, pledged his support for MS Society Scotland’s Kiss Goodbye to MS campaign.

 

Keith From MS Society Scotland, Stacey Adam & George Adam MSP

George said,

 

“The MS Society is a charity close to my heart with my wife Stacey suffering from Multiple Sclerosis (MS). Their are many families in Scotland that are affected by this condition and I understand how hard it can be living a normal life, there are so many things that we take for granted one of the things being accessability to restaurants and shops. Although accessibility has improved and is continuing to improvie there are still a lot of places which do not have lifts or electric doors, these problems need to be looked into and addressed.

 

“The MS Society are a voice for those effected by MS and continue to work hard and raise awareness of the illness and the trouble it can cause, it is therefor vital for us to support them with the work and research they do.

 

Morna Simpkins, Director for MS Society Scotland said:

 

“On this MS Week we would like to highlight the importance of MS research. For more than 11,000 people in Scotland, living with MS is a daily reality. This is why the MS Society is driving cutting-edge research into more – and better treatments to ultimately stop MS.

 

“By joining a global group of fundraisers and taking part in Kiss Goodbye to MS, your small sacrifice could help us find new treatments for people living with MS and their loved ones.”

 

MS is an unpredictable condition that is different for everyone. It affects how a person thinks, feels and moves. For support and information, please contact the helpline on 0808 800 8000.

 

Sign up for Kiss Goodbye to MS on the MS Society website at www.mssociety.org.uk/kissgoodbyetoMS

 

 

 

About multiple sclerosis
MS affects more than 100,000 of us in the UK
MS is often painful and exhausting and can cause problems with how we walk, move, see, think and feel
It’s unpredictable and different for everyone

About the MS Society
The MS Society is here for people with MS, through the highs, lows and everything in between
They have a free helpline – 0808 800 8000 and information can be found on our website www.mssociety.org.uk

About Kiss Goodbye to MS
Give up your guilty pleasure this May to raise money for MS research
Whether it’s white wine or chocolate treats, you can help ‘Kiss Goodbye to MS’
The MS Society is driving cutting-edge research into more – and better – treatments
Sign up on the MS Society website at www.mssociety.org.uk/kissgoodbyetoMS
Together, we’re strong enough to stop MS
Join a global community of fundraisers working together to ‘Kiss Goodbye to MS’
Your small sacrifice could help us find new treatments for 100,000 people living with MS and their loved ones
Tell us your guilty pleasure using #KissGoodbyetoMS

 

World MS Day 2015

Today is World MS Day.  George, whose wife Stacey has MS, is the Convenor of the Cross Party Group on MS in the Scottish Parliament and below is the motion he recently submitted in recognition of this years World MS Day.

George, Stacey and Stacey's father Tom during this years MS Week

George, Stacey and Stacey’s father Tom during this years MS Week

World MS Day 2015

That the Parliament acknowledges World MS Day as research by the MS Society reveals that many people are misdiagnosed and live in uncertainty for years before MS diagnosis; notes that the survey of over 1,500 people with MS across the UK found that 81% had been misdiagnosed by their GP, more than a quarter were told that they had a trapped nerve, one in 10 were misdiagnosed with depression or anxiety or stress and a further 11% were told they had had a stroke; notes that the MS Society is highlighting the importance of GPs recognising the warning signs and referring people promptly to a consultant neurologist who can then make an accurate diagnosis; further notes that the society is calling for the role of specialist nurses to be recognised, and while it considers that the commitment from the First Minister for an additional £2.5 million investment in specialist nursing and care is welcomed, it would be helpful for further guidance to be published on how this will help those diagnosed with MS.

Paisley’s MSP leads campaign to improve access to MS medicines

George is supporting MS Week 2014

George is supporting MS Week 2014

Paisley’s MSP George Adam is leading a series of events this week to help ensure that all people living with MS in Scotland have better access to treatments, regardless of where they live.

This comes as the MS Society revealed that people with MS often face significant barriers in accessing licensed treatments, the information to decide what is right for them and the specialists who can help.

This MS Week (28 April – 4 May) the MS Society launched its new campaign Treat Me Right. The charity’s campaign calls on decision-makers and the MS community to tackle the barriers in the way of people getting the right treatment at the right time.

George, who is the Convener of the Cross Party Group on MS is championing the campaign and leading the awareness-raising in the Scottish Parliament all this week.

On Wednesday George will host a high-profile reception in Holyrood to showcase the campaign and on Thursday lead MSPs in a debate on the topic of access to MS medicines and the challenges faced by people living with the condition in Scotland.

George said, “I’m pleased to be able to show my support for this important campaign and to encourage MSPs from across the political spectrum to work together in improving services for people affected by MS. With the progress made in MS research over the years it is unacceptable that licensed treatments that could help people with the condition should be out of reach. As many people will know, I have first-hand experience of MS due to my wife Stacey being diagnosed with the condition when she was 16. I am all too familiar with how this condition can affect people and their families and we must strive to do all we can to ensure everyone with this condition gets the right treatment at the right time. ”

Stewart Long, Interim Director for the MS Society in Scotland said, “There are over 11,000 people living with MS in Scotland and it is essential they people living with the condition can access the right treatments, services and support. Unfortunately, many people are in the dark about or unable to access medicines that could potentially help manage their condition. This needs to change. We have been delighted by the support we have received from MSPs for our Treat Me Right campaign and thank George Adam MSP in particular for his leadership and commitment. By working together we can make that change happen”.

George launches Cross Party initiative on multiple sclerosis

George with Sarah and Becky from the MS SocietyGeorge Adam MSP for Paisley, showed his support for people with multiple sclerosis (MS) at a launch meeting last night in the Scottish Parliament.

 

The meeting was the launch of Scotland’s first Cross Party Group on MS, a grouping of MSPs, the MS Society, voluntary organisations and others who are committed to tackling the issues that affect the 10,000 people in Scotland living with the neurological condition.

 

George Adam MSP who has been a long-term advocate for people with MS and who Chairs the Group in the Scottish Parliament said: “I am delighted to be involved in this initiative and to see it come together this week. MS is a condition that affects more than 10,000 people in Scotland, with the impact felt across every community and constituency. My family is just one of the many affected by MS, after my wife Stacey was diagnosed with the condition. The Cross Party Group is a means of working together with a common purpose to influence change and improve standards of care. I’m pleased to be part of this dedicated group within the Scottish Parliament and look forward to seeing where it takes us.”

 

Rebecca Duff, Head of Policy and Communications at the MS Society in Scotland added: “The MS Society looks forward to working with George Adam MSP to make a positive difference to the 10,000 people with MS in Scotland and their families. MS is a common but very unpredictable condition that mainly affects people in their 20s and 30s, often bringing with it significant physical, emotional and financial consequences. The Cross Party Group is an important vehicle for helping ensure that people affected by MS can access the services and support that they need when they need it. The support shown for the Group has given us a fantastic start and we look forward to making an impact together over the coming months.”

 

For media enquiries including photos and quotes please contact the MS Society Scotland Press Office: scotlandpress@mssociety.org.uk 0131 335 4050 or 07825 101 977.

Notes to Editors:

 

  • The MS Society is the leading UK charity for people with MS (www.mssociety.org.uk)
  • We’re funding research and fighting for better treatment and care to help people with MS take back control. We’ve already made important breakthroughs, and we’re now at the start of a generation of MS research that holds incredible promise
  • More than 100,000 people live with multiple sclerosis in the UK and over 10,000 live with MS in Scotland.
  • Most people are diagnosed in their 20s and 30s
  • MS affects almost three times as many women as men
  • MS can get steadily worse, or remain unpredictable throughout your life – one day you can be fine, the next you might lose your sight or be unable to move
  • We have a freephone helpline – 0808 800 8000

George Celebrates MS Week

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Within Scotland there remains a ‘postcode lottery’ for people with MS in accessing treatments, health and social care services and employment support to name but a few. There are also many areas where Scotland lags behind the rest of the UK.

On Wednesday 1st May the MS Society, with support from George Adam MSP, showcased the results from their report, “A lottery of treatment and care” during their Garden Lobby reception. Michael Matheson MSP, Minister for Public Health, also spoke at the event.

George Adam MSP said, ‘It was a privilege to hold a members debate at parliament during MS Week and to host a reception for the MS Society to showcase their report to MSPs. Many people will already know that my wife Stacey has the condition so I have an in depth knowledge of how MS can affect families.

There is so much to find out about MS; What are the causes?  How do you control it?  How do we cure it?  I would like to thank the Minister for Public Health, Michael Matheson, for detailing the Scottish Government’s plans to tackle MS head on and for attending all the MS events this week.’

Christine Carlin, Director for Scotland said, “There are over 10 500 people living with MS in Scotland and it is essential that these people can access the right treatments, services and support in order to manage their condition. We have been delighted by the support we have received from MSP’s throughout the week and at our reception. On behalf of the Society I would like to thank George Adam MSP and Michael Matheson MSP for their commitment and support. By working together we can stop the MS Lottery.”

Cat Johnson, who spoke at the event, was diagnosed with MS when she was 21 years old, “living with a fluctuating condition like MS means that you never really know how you’re going to feel from day to day. It is absolutely essential that we can access the right treatments, services and support when we need them. When all this is in place, people with MS can live independent lives. Without it, you’re struggling with the symptoms of your condition and the physical and social barriers that stop you from living your life to the full. I jumped at the chance to speak at the MS Society’s MS week reception, and was overwhelmed to see so many MSPs there showing their support. Working together we can make a difference people like me who live with MS “

Debate Postcode Lottery for People with Multiple Sclerosis

MSP George Adam speaks in the debate Postcode Lottery for People with Multiple Sclerosis

 

National Multiple Sclerosis (MS) Week

Stacey and her father during MS WeekGeorge recently secured his second members debate, on a subject very close to his heart, Multiple Sclerosis (MS). As many of you will know, George’s wife Stacy suffers from MS, first being diagnosed when she was 16. Stacey has the secondary/ progressive form of the disease and often finds it difficult to undertake small everyday tasks, however on occasion, she can get up and dance with George on a night out. Scotland has the most cases of MS in the world per capita, and while great steps are being taken every day to understand this disease, much has still to be done. That is why debates like that which George secured in the parliament, during National MS week, helps to make people more aware of this disease. George would like to thank all the members who took part in the debate, everyone who supported National MS Week, and also his wife Stacey who made the trip through to Edinburgh for the debate, while this was a long and tiring day for Stacey, she too appreciated all the support people have offered her and everyone else who suffers from this disease.

You can view the dabate by clicking here.