Today is World MS Day. George, whose wife Stacey has MS, is the Convenor of the Cross Party Group on MS in the Scottish Parliament and below is the motion he recently submitted in recognition of this years World MS Day.
World MS Day 2015
That the Parliament acknowledges World MS Day as research by the MS Society reveals that many people are misdiagnosed and live in uncertainty for years before MS diagnosis; notes that the survey of over 1,500 people with MS across the UK found that 81% had been misdiagnosed by their GP, more than a quarter were told that they had a trapped nerve, one in 10 were misdiagnosed with depression or anxiety or stress and a further 11% were told they had had a stroke; notes that the MS Society is highlighting the importance of GPs recognising the warning signs and referring people promptly to a consultant neurologist who can then make an accurate diagnosis; further notes that the society is calling for the role of specialist nurses to be recognised, and while it considers that the commitment from the First Minister for an additional £2.5 million investment in specialist nursing and care is welcomed, it would be helpful for further guidance to be published on how this will help those diagnosed with MS.
A Paisley politician has spoken from the heart about a debilitating condition that affects thousands of Scots.
George Adam’s wife Stacey suffers from MS, and the MSP for Paisley gave a talk at the Scottish Parliament about the devastating effects of the illness.
And he was present to hear the MS Society call for an end to the postcode lottery, which the group says restricts the ability of some sufferers to access treatments and assistance.
The MS Society also showcased the results of their report – A Lottery Of Treatment And Care – during their Garden Lobby reception.
Michael Matheson, the minister for public health, also spoke at the event.
Paisley MSP Mr Adam told the Paisley Daily Express: “It was a privilege to hold a members debate at parliament during MS Week and to host a reception for the MS Society to showcase their report to MSPs.
“Many people will already know that my wife Stacey has the condition so I have an in-depth knowledge of how MS can affect families.
“There is so much to find out about MS, such as, what are the causes? How do you control it? How do we cure it?
“I would like to thank Michael Matheson, for detailing the Scottish Government’s plans to tackle MS head on and for attending all MS events.”
Christine Carlin, Director for MS Scotland said: “There are over 10,000 people living with MS in Scotland and it is essential that these people can access the right treatments, services and support in order to manage their condition.
“We have been delighted by the support we have received from MSPs throughout the week and at our reception.
“On behalf of the society, I would like to thank both George Adam and Michael Matheson for their commitment and support. By working together we can stop the MS Lottery.”
Cat Johnson, who spoke at the event, was diagnosed with MS when she was 21, and said: “Living with a fluctuating condition, such as MS, means that you never really know how you’re going to feel from day to day.
“It is absolutely essential that we can access the right treatments, services and support when we need them.
“When all this is in place, sufferers can live independent lives.
“Without it, you struggle with the symptoms of your condition and the physical and social barriers that stop you from living life to the full.
“I jumped at the chance to speak at the MS Society’s MS week reception and was overwhelmed to see so many MSPs showing their support.
“Working together we can make a difference for people like me who live with MS.”
The MS Society are calling on the Scottish Government to ensure that every person with MS living in Scotland has a personalised treatment, care and support plan, with two comprehensive reviews each year.
MS Week Debate, by MSP George Adam
Within Scotland there remains a ‘postcode lottery’ for people with MS in accessing treatments, health and social care services and employment support to name but a few. There are also many areas where Scotland lags behind the rest of the UK.
On Wednesday 1st May the MS Society, with support from George Adam MSP, showcased the results from their report, “A lottery of treatment and care” during their Garden Lobby reception. Michael Matheson MSP, Minister for Public Health, also spoke at the event.
George Adam MSP said, ‘It was a privilege to hold a members debate at parliament during MS Week and to host a reception for the MS Society to showcase their report to MSPs. Many people will already know that my wife Stacey has the condition so I have an in depth knowledge of how MS can affect families.
There is so much to find out about MS; What are the causes? How do you control it? How do we cure it? I would like to thank the Minister for Public Health, Michael Matheson, for detailing the Scottish Government’s plans to tackle MS head on and for attending all the MS events this week.’
Christine Carlin, Director for Scotland said, “There are over 10 500 people living with MS in Scotland and it is essential that these people can access the right treatments, services and support in order to manage their condition. We have been delighted by the support we have received from MSP’s throughout the week and at our reception. On behalf of the Society I would like to thank George Adam MSP and Michael Matheson MSP for their commitment and support. By working together we can stop the MS Lottery.”
Cat Johnson, who spoke at the event, was diagnosed with MS when she was 21 years old, “living with a fluctuating condition like MS means that you never really know how you’re going to feel from day to day. It is absolutely essential that we can access the right treatments, services and support when we need them. When all this is in place, people with MS can live independent lives. Without it, you’re struggling with the symptoms of your condition and the physical and social barriers that stop you from living your life to the full. I jumped at the chance to speak at the MS Society’s MS week reception, and was overwhelmed to see so many MSPs there showing their support. Working together we can make a difference people like me who live with MS “
George recently secured his second members debate, on a subject very close to his heart, Multiple Sclerosis (MS). As many of you will know, George’s wife Stacy suffers from MS, first being diagnosed when she was 16. Stacey has the secondary/ progressive form of the disease and often finds it difficult to undertake small everyday tasks, however on occasion, she can get up and dance with George on a night out. Scotland has the most cases of MS in the world per capita, and while great steps are being taken every day to understand this disease, much has still to be done. That is why debates like that which George secured in the parliament, during National MS week, helps to make people more aware of this disease. George would like to thank all the members who took part in the debate, everyone who supported National MS Week, and also his wife Stacey who made the trip through to Edinburgh for the debate, while this was a long and tiring day for Stacey, she too appreciated all the support people have offered her and everyone else who suffers from this disease.
Interesting linksHere are some interesting links for you! Enjoy your stay :)
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